Articles from Foundation for Sarcoidosis Research

CHICAGO, May 19, 2025 (GLOBE NEWSWIRE) -- In recognition of Clinical Trials Day, the Coalition to Transform Clinical Trial Engagement (CTCTE) proudly announces the launch of the Champions for Change – Paid Time Off (PTO) Initiative, a national effort to reduce job-related barriers to clinical trial participation by partnering with employers to provide paid time off (PTO) for employees enrolling in trials.

CHICAGO, May 08, 2025 (GLOBE NEWSWIRE) -- The Foundation for Sarcoidosis Research (FSR) is pleased to announce the appointment of four new members to its Board of Directors: John Mockovciak III, Joan Levy, PhD, John Carlin, and Molly Flick.

Announcement coincides with Foundation’s 25th anniversary and recent FMLA clarification supporting clinical trial access

CHICAGO, April 02, 2025 (GLOBE NEWSWIRE) -- As clean up continues from January’s devastating Los Angeles wildfires, the Foundation for Sarcoidosis Research (FSR) is joining with Walgreens, Cedars-Sinai, and Foothill Unity to provide community members with free N95 masks to protect their lungs now and in the future.

CHICAGO, Feb. 03, 2025 (GLOBE NEWSWIRE) -- The Foundation for Sarcoidosis Research (FSR) has awarded three pilot grants in the amount of $100,000 each, to Dr. Satish Sati from the University of Pennsylvania, Dr. Claire Rice from the University of Bristol, and Dr. Shaikh Muhammad Atif from the University of Colorado. This year’s funding represents a 500% increase from the previous year’s funding and supports early-stage research projects that show significant potential to drive meaningful progress in sarcoidosis diagnosis, treatment, and patient care.

9/11 First Responders Serve as a Warning for the Long-Term Health Effects of Smoke Inhalation and Toxic Exposure

CHICAGO, Nov. 27, 2024 (GLOBE NEWSWIRE) -- The Foundation for Sarcoidosis Research (FSR) is proud to announce the recipients of the 2024 FSR Cardiac Sarcoidosis Grant, providing $200,000 in funding to advance groundbreaking research aimed at improving the diagnosis, management, and treatment of cardiac sarcoidosis and doubling FSR’s investment from 2023.

CHICAGO, Nov. 16, 2024 (GLOBE NEWSWIRE) -- In August of 2023, the Foundation for Sarcoidosis Research (FSR) submitted a Request for Opinion Letter on Clinical Trials and the Family and Medical Leave Act (FMLA) with the U.S. Department of Labor (DOL).  On November 8, 2024, FSR received a letter of clarification from the DOL that ensures employee access to FMLA benefits when participating in clinical trials.   

CHICAGO, Oct. 31, 2024 (GLOBE NEWSWIRE) -- On October 28, 2024, the Foundation for Sarcoidosis Research (FSR) hosted a groundbreaking Externally Led Patient-Focused Drug Development (EL-PFDD) meeting on sarcoidosis with the U.S. Food and Drug Administration (FDA). This virtual event attracted nearly 350 sarcoidosis patients, caregivers, healthcare providers, industry partners, and advocates, coming together to address the critical unmet needs and challenges faced by those living with sarcoidosis.

CHICAGO, Aug. 28, 2024 (GLOBE NEWSWIRE) -- The Foundation for Sarcoidosis Research (FSR), the leading international organization dedicated to finding a cure for sarcoidosis and improving care for sarcoidosis patients, is pleased to announce the appointment of fourteen new members to serve the organization’s Scientific Advisory Board (SAB). This brings the current SAB membership to 25 members.

CHICAGO, May 16, 2024 (GLOBE NEWSWIRE) -- Today, the Foundation for Sarcoidosis Research (FSR), the leading international organization dedicated to finding a cure for sarcoidosis and improving care for sarcoidosis patients, takes a bold step forward in addressing health disparities by announcing the launch of the Coalition for Clinical Trial Equity as part of their latest phase of the Ignore No More Initiative, ACTe Now!: Roadmap 2 Progress. This initiative aims to increase representation of Black and African American patients in clinical trials, thereby improving health outcomes for marginalized communities.

CHICAGO, May 15, 2024 (GLOBE NEWSWIRE) -- The Foundation for Sarcoidosis Research (FSR) proudly announces Mathew Hall, a devoted supporter and sarcoidosis patient, will be competing in the upcoming Ironman 70.3 Triathlon in Chattanooga, TN, on May 19, 2024, to raise awareness and funds for sarcoidosis.

 

CHICAGO, March 27, 2024 (GLOBE NEWSWIRE) -- 26 Patient Volunteer Leaders representing 16 states and 17 hospitals joined the Foundation for Sarcoidosis Research (FSR) at the inaugural FSR Global Sarcoidosis Clinic Alliance (FSR-GSCA) Volunteer Patient Leadership Advanced Training Conference held at Cleveland Clinic. This groundbreaking event, which took place from March 8th to March 10th, 2024, brought together passionate Volunteer Leaders from across the nation dedicated to advancing awareness, support, and research for sarcoidosis.

CHICAGO, March 01, 2024 (GLOBE NEWSWIRE) -- The Foundation for Sarcoidosis Research (FSR) is honored to host its inaugural in-person training of FSR-GSCA Volunteer Patient Leaders from around the United States at Cleveland Clinic, the FSR Global Sarcoidosis Clinic Alliance (FSR-GSCA) Founding Member. This inaugural in-person training of FSR-GSCA Volunteer Patient Leaders has been structured to empower volunteer patient leaders with the skills, knowledge, and connections necessary to make a meaningful impact in the fight against sarcoidosis.

CHICAGO, Feb. 15, 2024 (GLOBE NEWSWIRE) -- The Foundation for Sarcoidosis Research (FSR) proudly announces the promotion of Tricha Shivas to Chief of Staff and Strategy. Ms. Shivas, who joined FSR in 2021 and has served FSR as the Vice President of Research and Strategic Partnerships and the Chief Strategy Officer, has played a pivotal role in the expansive growth of FSR over the last three years.

CHICAGO, Dec. 18, 2023 (GLOBE NEWSWIRE) -- Foundation for Sarcoidosis Research (FSR) announces $100,000 in funding for support of research aimed at improving diagnosis, management, and treatment of cardiac sarcoidosis.

CHICAGO, Nov. 01, 2023 (GLOBE NEWSWIRE) -- Foundation for Sarcoidosis Research (FSR) announces three clinics that have been selected as members of FSR Global Sarcoidosis Clinic Alliance (FSR-GSCA) – a groundbreaking initiative that will have a worldwide impact on advancing sarcoidosis research and improving the lives of those with sarcoidosis through patient and clinician education, engagement, and support – through the FSR-GSCA Capacity Building Grant.

CHICAGO, Sept. 12, 2023 (GLOBE NEWSWIRE) -- Foundation for Sarcoidosis Research (FSR), the leading international nonprofit organization dedicated to finding a cure and improving care for sarcoidosis patients, conducted a two-day training of patient Volunteer Leaders to collaborate with and support the FSR Global Sarcoidosis Clinic Alliance Members (FSR-GSCA) to raise awareness, provide education, and advocate for better therapies and improved patient outcomes for those living with sarcoidosis. FSR-GSCA is a member program consisting of clinics, hospitals, individual providers, patients, and caregivers committed to finding a cure and offering evidence-based, patient-centric care for those living with sarcoidosis.

CHICAGO, July 25, 2023 (GLOBE NEWSWIRE) -- The Foundation for Sarcoidosis Research (FSR) is pleased to announce that the FSR Sarcoidosis Research Fellowship for 2023-2025 is being awarded to Dr. Christen Vagts from FSR Global Sarcoidosis Clinic Alliance Founding Member, University of Illinois Hospital and Clinic, for her outstanding proposal, Immune Mediators of Active Advanced Pulmonary Sarcoidosis.

CHICAGO, July 13, 2023 (GLOBE NEWSWIRE) -- The Foundation for Sarcoidosis Research (FSR) is pleased to announce the appointment of Calvin Harris Jr., CPA and Joel D. Rosen, Esq. to the FSR Board of Directors.

CHICAGO, May 22, 2023 (GLOBE NEWSWIRE) -- Foundation for Sarcoidosis Research (FSR), the leading international organization dedicated to elevating research, raising awareness and providing support for individuals affected by sarcoidosis, is proud to announce the release of the Ignore No More Campaign on Clinical Trials Diversity: Advancing Clinical Trial Equity for Black Patients with Sarcoidosis White Paper which summarizes the findings and recommendations from an IRB-approved national survey of Black Americans to get a better understanding of the challenges and experiences they face in considering and participating in clinical trials. This white paper provides innovative recommendations to address these challenges proposed by nationally renowned key opinion leaders in sarcoidosis, diversity, equity, and inclusion, industry, and African American patients.

CHICAGO, March 30, 2023 (GLOBE NEWSWIRE) -- The Foundation for Sarcoidosis Research (FSR) is proud to launch the Stand Up for Sarc Campaign this April as part of National Sarcoidosis Awareness Month.

CHICAGO, March 16, 2023 (GLOBE NEWSWIRE) -- The Foundation for Sarcoidosis Research (FSR), the leading international nonprofit organization dedicated to finding a cure and improving care for sarcoidosis patients, conducted a two-day training of patient volunteer leaders to collaborate with and support the FSR Global Sarcoidosis Clinic Alliance Members (FSR-GSCA) to raise awareness, provide education, and advocate for better therapies and improved patient outcomes for those living with sarcoidosis. FSR-GSCA is a member program consisting of clinics, hospitals, individual providers, patients, and caregivers committed to finding a cure and offering evidence-based, patient-centric care for those living with sarcoidosis.

CHICAGO, March 10, 2023 (GLOBE NEWSWIRE) -- Foundation for Sarcoidosis Research (FSR) has been named an Official Charity Partner for the 2023 TCS New York City Marathon, which takes place on Sunday, November 5. FSR will be among more than 550 official charity partners providing thousands of runners the opportunity to run in the world’s biggest and boldest marathon.

CHICAGO, Feb. 28, 2023 (GLOBE NEWSWIRE) -- The Foundation for Sarcoidosis Research (FSR), the leading international nonprofit organization dedicated to finding a cure and improving care for sarcoidosis patients, announces FSR’s Inaugural Sarcoidosis Crystal Awards Gala: Celebrating Connections, Collaboration, and Catalyzing Research. The Gala will bring together the sarcoidosis community for an evening celebrating clinicians, researchers, and advocates from around the globe who are leading the charge to advance sarcoidosis research and carve the path towards better treatments and a cure.